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Improving Clinical Processes and Effectiveness of Care through Creation of a Disease-Specific Registry

Multiple Sclerosis (MS) is a disease that affects the central nervous system of about 400,000 people in the United States. With no known cure, current treatment for MS is to slow disease progression, manage symptoms and maintain the patient’s quality of life. Effective treatment of MS requires detailed patient information be readily available.
To better monitor disease progression and long-term patient outcomes, clinicians with OSF HealthCare Illinois Neurological Institute collaborated with researchers at the University of Illinois College of Medicine Peoria (UICOMP) to build a customized database.
The customized MS flowsheet registry resulted in several benefits, including:

20.9 minute reduction (per patient) physician time spent searching for data.
2.2 minute reduction (per patient) support staff time spent searching for data.
300 percent increase in investigator initiated studies.

The success of the customized database suggests possible expansion may improve outcomes in other chronic or specialty care patient populations.

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