PROs and PROMs complement clinical indicators in understanding the quality of healthcare a team is delivering. For example, an improvement program for prostate cancer patients that only focuses on improving blood loss or length of stay in the hospital completely misses a patient’s biggest fears: will they need to wear pads for the rest of their life? Will their relationship with their partner be the same as it was?
By focusing on outcomes that matter most to patients, health systems will be more successful at improving outcomes. ICHOM describes five strategies for getting started with PROs and PROMs:
- Find the Believers (Identify Clinician Champions)
- Organize a Cross-Functional Team (with Appropriate Governance)
- Invest Time and Resources
- Celebrate Progress Along the Way
- Use Early Successes to Scale and Spread